Thursday, March 22, 2012

Current status 3/22/12 late night

I was working on writing a longer post to fill in all the gaps and details, but realized my mood was crap and the post was very derogatory So I'll abandon that for now and just give current.
This morning Josie had a bone marrow aspirate that confirmed the diagnosis of leukemia. Most likely ALL, which is the more common, "better" one to have. Waiting confirmation from mayo clinic tomorrow. We were supposed to have her port put in this afternoon, but the surgery suite became unavailable. Now we have to wait until Saturday morning- she will get the port, spinal tap, and intra-thecal (spinal) chemo. They will also start the other forms of chemo. We'll be here until Wednesday at least.
Today was really hard - seemed like way too many people causing agitation of one sort or another. Very hard from the standpoint of watching Josie be agitated, and then from my abackground in large animals where we don't touch something that's not broken. I can get it from the standpoint of needing baselines, but do we really need every 4 hrs vital checks in the middle of the night when they've all been normal and she's on nothing? It's the mother bear instinct I guess. And lack of zzz's.
Tomorrow currently has nothing planned. I was voting for taking her home for a while. The other side of the coin is that she's kind of getting used to things here and if we take her out and bring her back it might be more stressful. Not sure.
Please pray for good sleep, peace of mind, and strength for Saturday as that will be a big day I have a feeling.


Betzy Petto said...

Wow, talk about turning your life upside-down. There couldn't be stronger people there for lil Josie. I know it will be a long, hard road, but what a pot of gold you will have at the end! Always praying for all of you!

Sara Crum said...

Rachelle, words cant express how heart broken I am that your family will have to go through this but I hold strong to prayer and I'm believing in healing.

Cyndee said...

Rick and I want you to know that we are praying for Josie, those who are taking care of her, and of course your entire family. We prayed this AM that all of you would get some rest today.
We want you to know that we are avaialbe to help in anyway that we can.
Sending a Momma Viel hug your way this morning.

MKP said...

Even though we do not know each other, you are in my thoughts and prayers for strength and recovery. My daughter was diagnosed with leukemia just two years ago, we are close to the end of treatment and know what you are feeling right now. Please stay stay positive, you are in good hands.
Mary Kay Pederson